Team Toothpick Racing has partnered with the Cystinosis Research
Foundation to find better treatments, and ultimately, a cure for cystinosis.
In 2011, phlebotomist Jade Yount, Team Toothpick Racing crew member,
brought to our team's attention Mary Head's fight with cystinosis. This joyful
and brave little girl won over our hearts, and last year TTR raised over $400
for the Foundation. In 2012, we will continue to hold raffles in an effort to raise
funds and find a cure for this debilitating disease.
What is Cystinosis?
Cystinosis is a rare "orphan" metabolic disease that afflicts approximately 500 children and young adults in the
United States and approximately 2,000 worldwide. Although there is a treatement for cystinosis, currently there
is no cure.
The Cystinosis Research Foundation (CRF) is focused on bench and clinical research with an emphasis on
translational research that will result in clinical trials.
• Largest provider of grants for cystinosis research in the world
• $16.5 million raised since 2003, every dollar to cystinosis research
• Funds raised by families and foundations from around the world
• Scientific Review Board, researchers and scientists from around the world, evaluates 25 to 30 grant proposals annually
• Currently, funding 34 bench and clinical studies in 8 countries
• Funded more than 78 studies and 13 fellowships since 2003
• CRF-funded research led to discovery of a delayed-release form of cysteamine, currently in FDA clinical trials
• CRF-funded stem cell and gene therapy research putting a cure for cystinosis within reach
• Third International Cystinosis Research Symposium, 2012
• Third Day of Hope Family Conference, 2012
|:: Team Toothpick Supports the Cystinosis Research Foundation
Mary and her mother Melissa